How to Apply for Disability Living Allowance (DLA) for an Autistic Child

Applying for Disability Living Allowance (DLA) for an autistic child can seem overwhelming, but it’s a crucial step in getting the financial support needed for extra care and supervision. If you’re feeling unsure or a bit lost on where to start, you’re not alone.

This guide is here to help make things simpler, covering everything from checking if your child is eligible to filling out the application form and knowing what to expect after you submit your claim.

What is DLA?

DLA is a tax-free benefit designed to help with the extra costs of raising a child with a disability or health condition. The great thing is that it’s not based on your income or savings, so it’s available to all families who qualify.

Can You Get DLA for a Child with Autism?

Yes, you can apply for DLA if your child has autism. The key is showing that your child needs more care, supervision, or help with mobility than other children of the same age who don’t have a disability.

To claim DLA for a child with autism, you need to fill out the DLA claim form, providing detailed information about your child’s care and mobility needs.

How Much Can You Get for the DLA Care Component?

The care component of DLA is intended to help cover the costs of day-to-day care for your child due to their autism. The amount you can get depends on how much help your child needs.

Care Component Rate	Weekly Rate	Description
Lowest Rate	£28.70	For children who need some help or supervision during the day or night.
Middle Rate	£72.65	For children who need frequent help or supervision during the day, or help during the night.
Highest Rate	£108.55	For children who need help or supervision throughout the day and night, or who are terminally ill.

How Much Can You Get for the DLA Mobility Component?

The mobility component helps with costs if your child struggles to get around because of their autism. It’s not just about walking, but also about how safe and manageable it is for them to navigate different environments, especially unfamiliar or busy places.

Mobility Component Rate	Weekly Rate	Description
Lower Rate	£28.70	For children who can walk but need guidance or supervision when outdoors.
Higher Rate	£75.75	For children who have severe difficulties walking or are unable to walk due to their condition.

Useful Reading: How to Get High Rate Mobility for Autism.

Who Can Apply for DLA?

To qualify for DLA, your child must be under the state pension age (usually 16) and have had these additional needs for at least three months, with the expectation that they will continue for at least another six months.

For children with autism, this usually means needing extra help with daily tasks, staying safe, or managing in social situations.

The DWP looks at the following:

• Extra Care Needs: Your child must need more care, attention, or supervision than other children their age who don’t have a disability or health condition.
• Mobility Needs: Your child must have significant difficulties with walking or need guidance and supervision to stay safe when they’re out and about.

It’s important to note that DLA isn’t automatically awarded just because your child has an autism diagnosis. The focus is on how their condition affects their daily life and how much extra support they need compared to other children of the same age.

Step-by-Step Guide to Applying for DLA

Applying for DLA might feel daunting, but breaking it down into steps can make it easier to manage. Here’s a simple guide to help you get started:

1. Check if Your Child is Eligible

Before you dive in, make sure your child meets the basic eligibility criteria. They need to have care or mobility needs that are greater than those of other children their age who don’t have a disability. Think about your child’s daily routine and the extra help they need.

2. Get the DLA Application Form

You can get the DLA form by calling the DLA Helpline at 0800 121 4600 or by downloading it from the GOV.UK website. It’s best to call because your claim will be backdated to the date of your call, which means you might receive more money. Keep a note of when you called and the reference number they provide.

3. Gather Evidence to Support Your DLA Claim

Strong evidence is crucial for a successful DLA application. Here are some ways to collect the right information:

• Keep a Diary: Track your child’s daily routines for at least a week. Write down specific examples of when they needed help, what you did to assist them, and any additional costs or time spent. Highlight both the good and bad days to show the full picture.
• Collect Reports from Professionals: This can include letters from doctors, therapists, teachers, or anyone who understands your child’s needs. These reports should detail how autism affects your child and the level of care they require.
• Describe Your Child’s Needs: Be honest and specific about your child’s challenges. Use real-life examples to show why your child needs extra help compared to other kids their age. The more detail you can provide, the better.

4. Fill in the DLA Application Form

When you’re ready to complete the form, take your time and be thorough. It’s okay to feel a bit emotional or overwhelmed because this is all about ensuring your child gets the support they need.

It’s helpful to fill out the form in stages rather than all at once, so you can provide clear and thoughtful answers. If you run out of space, use extra sheets of paper to make sure you cover everything.

5. Send Your Completed DLA Application

After you’ve filled in the form and gathered all your evidence, send everything to the address listed in the form instructions. It’s a good idea to keep copies of your completed application and all supporting documents so you have a record of what you submitted.

What Happens After You Submit Your DLA Application?

Once your application is sent, you should receive a confirmation letter or text within about two weeks. The Department for Work and Pensions (DWP) will then review your claim, and you’ll usually get a decision within three months. The decision letter will let you know if your application has been successful and, if so, how much DLA you’ll receive and for how long.

If your claim is not successful, the letter will explain why. You can request a mandatory reconsideration if you believe the decision is wrong or if your child has not been awarded the correct rate. This process allows you to provide more information or additional evidence if needed.

Transition to Personal Independence Payment (PIP) When Your Child Turns 16

When your child turns 16, they will need to switch from DLA to Personal Independence Payment (PIP). This is a similar benefit for people aged 16 and over. You’ll get a letter from the DWP before their 16th birthday with instructions on how to make this transition. It involves completing a new form, and your child may need to attend an assessment even if they didn’t have one for DLA.

Tips for a Successful DLA Application

• Be Detailed: The more specific examples you can provide, the better. Describe your child’s daily life, including the extra help they need because of their autism.
• Include All Relevant Evidence: Attach all the reports, letters, and any other evidence from professionals who know your child’s needs well.
• Focus on the Extra Help: Make sure to highlight how your child’s needs go beyond those of other children of the same age without a disability.
• Take Your Time: Filling in the form can feel like a big task, but taking it step by step will help. Accurate and thorough information is what’s most important.
• Get Support if You Need It: Organisations like Citizens Advice and Contact can help you with the form and offer guidance on how to present your child’s needs effectively.

Overall

Applying for DLA for an autistic child can make a big difference in covering the extra costs of care and support. By taking the time to prepare your application thoroughly, gather strong evidence, and clearly explain your child’s needs, you’ll be giving your application the best chance of success.

FAQs

What Are the DLA Rates for a Child with Autism?

The DLA rates for a child with autism depend on the level of care and mobility needs. For the care component, the lowest rate is £28.70 per week, the middle rate is £72.65 per week, and the highest rate is £108.55 per week. For the mobility component, the lower rate is £28.70 per week, and the higher rate is £75.75 per week.

How Long Does It Take to Get a DLA Decision?

After submitting your DLA application, it typically takes about three months for the Department for Work and Pensions (DWP) to make a decision. You should receive a confirmation letter or text within two weeks of submission.

Can You Get DLA if Your Child Is Diagnosed with Autism?

Yes, a child diagnosed with autism can qualify for DLA if they need more care or supervision than other children of the same age without a disability. Eligibility is based on the level of care and mobility support needed due to their condition, not just the diagnosis itself.

Do You Need an Assessment for DLA?

Not all DLA claims require a face-to-face assessment. However, if the DWP needs more information about your child’s needs, they may arrange an assessment. This usually involves a healthcare professional who will evaluate your child’s requirements for care and mobility support.

What Happens if My DLA Claim Is Rejected?

If your DLA claim is rejected, you can ask for a mandatory reconsideration, which is a review of the decision. If the reconsideration is still not in your favour, you can appeal the decision through an independent tribunal. It’s advisable to seek support from Citizens Advice or similar organisations if you are considering an appeal.

How Do I Fill in the DLA Form for a Child with Autism?

When filling in the DLA form, provide detailed examples of your child’s daily challenges and the support they need. Include information about how frequently they need help, the type of help required, how long it takes, and the impact of not receiving this help. Gathering evidence from professionals who understand your child’s needs can also strengthen your application.

Does DLA Affect Other Benefits?

Receiving DLA can make you eligible for other benefits, such as Carer’s Allowance if you spend at least 35 hours a week caring for your child. DLA is not a means-tested benefit, so it does not affect income-based benefits like Universal Credit. However, it can increase the amount you receive from these benefits.

Can My Child Receive DLA and PIP at the Same Time?

No, your child cannot receive DLA and Personal Independence Payment (PIP) at the same time. DLA is for children under 16, while PIP is for those aged 16 and over. When your child turns 16, they will transition from DLA to PIP, which involves a new application and possibly an assessment.

How Do I Appeal a DLA Decision?

To appeal a DLA decision, you first need to request a mandatory reconsideration. If the decision still does not change, you can appeal to an independent tribunal. It’s helpful to provide additional evidence or clarify any information that might not have been fully understood in your initial application.

How Is DLA Paid?

DLA is usually paid every four weeks directly into your bank account. It can also be paid more frequently if you prefer. The exact amount depends on the rates awarded for the care and mobility components based on your child’s needs.